MND in the News

New gene therapy targeting C9orf72-ALS begins Phase 1 clinical trial in the UK | Dr Keith Mayl & Dr Ahmad Al Khleifat | MND Research Blog
New gene therapy targeting C9orf72-ALS begins Phase 1 clinical trial in the UK | Dr Keith Mayl & Dr Ahmad Al Khleifat | MND Research Blog

Researchers at King’s College Hospital, led by Professor Christopher Shaw, have embarked on the first…Read More

Kennedy’s Disease vs ALS: How muscle patterns can aid diagnosis and perform as a novel biomarker | MND Research Blog | Martina Slapkova
Kennedy’s Disease vs ALS: How muscle patterns can aid diagnosis and perform as a novel biomarker | MND Research Blog | Martina Slapkova

Researchers from University College London found that muscle MRI can help distinguish ALS from Kennedy’s…Read More

Add-on Masitinib Slows Progression of ALS, Final Phase 2/3 Trial Results Show | ALS News Today | Ana Pena
Add-on Masitinib Slows Progression of ALS, Final Phase 2/3 Trial Results Show | ALS News Today | Ana Pena

In a Phase 2/3 clinical trial, AB Science demonstrated that Mastinib in combination with Rilutek…Read More

Small-Molecule Compounds ID’d That May Lessen Protein Buildup in Cells Under Stress, an ALS Hallmark| ALS News Today | Patricia Inacio
Small-Molecule Compounds ID’d That May Lessen Protein Buildup in Cells Under Stress, an ALS Hallmark| ALS News Today | Patricia Inacio

A study at UC San Diego School of Medicine identified small-molecule compounds that reduced the…Read More

By Capturing Patients’ Feelings of Dyspnea, DALS-15 Scale May Ably Spot Those Needing Help with Breathing | ALS News Today | Ana Pena
By Capturing Patients’ Feelings of Dyspnea, DALS-15 Scale May Ably Spot Those Needing Help with Breathing | ALS News Today | Ana Pena

Researchers at Otto-von-Guericke University in Germany developed a patient-reported scale to quantify dyspnea in ALS…Read More

Tailored treatment for ALS poised to move ahead | Nature Medicine | Carrie Arnold
Tailored treatment for ALS poised to move ahead | Nature Medicine | Carrie Arnold

The US Food and Drug Administration (FDA) has provisionally approved an experimental personalized treatment for…Read More

Study Adds to Evidence that Smoking Increases Risk for ALS | ALS News Today | Jose Marques Lopes
Study Adds to Evidence that Smoking Increases Risk for ALS | ALS News Today | Jose Marques Lopes

Cigarette smoking has been proposed as a risk factor for developing ALS and accelerating disease…Read More

Shocking: New Zealand death rate for motor neuron disease five times global average | Hawthorne Caller | Mike Billings
Shocking: New Zealand death rate for motor neuron disease five times global average | Hawthorne Caller | Mike Billings

The Global Burden of Disease (GBD) study – the world‘s largest scientific effort to qualify…Read More

Swim training improves muscle strength in mouse model of ALS | ALS News Today | Joana Carvalho
Swim training improves muscle strength in mouse model of ALS | ALS News Today | Joana Carvalho

Swim training reduced the loss of muscle strength associated with ALS (5% less between 11…Read More

ALS Researchers Discover New Biomarker and Drug Target | GEN
ALS Researchers Discover New Biomarker and Drug Target | GEN

A research team led by scientists at Harvard University said it has found a potential…Read More

Major breakthrough in MND drug trial | Mercury
Major breakthrough in MND drug trial | Mercury

Australian scientists have developed a groundbreaking drug which postpones the development of Motor Neuron Disease.…Read More

New Aussie drug gives hope to treat MND | SBS NEWS
New Aussie drug gives hope to treat MND | SBS NEWS

Australian researchers have developed a drug called CuATSM which has been found to slow the…Read More

New Zealand has highest motor neurone mortality rate in the world | Stuff | Hannah Martin
New Zealand has highest motor neurone mortality rate in the world | Stuff | Hannah Martin

New Zealand has the highest mortality rates for motor neurone diseases in the world, new…Read More

New Zealand has world’s highest death rate from motor neuron disease | News Hub | Jamie Ensor
New Zealand has world’s highest death rate from motor neuron disease | News Hub | Jamie Ensor

A global study has revealed NZ has the highest mortality rate from MND, with 2…Read More

Shocking:New Zealand death rate for motor neuron disease five times global average | NZ Herald | Emma Russell
Shocking:New Zealand death rate for motor neuron disease five times global average | NZ Herald | Emma Russell

NZ’s MND death rate is the highest in the world and five times the global…Read More

Study reveals shocking death rates for Kiwis with motor neurone disease | NZ Herald
Study reveals shocking death rates for Kiwis with motor neurone disease | NZ Herald

Dr Emma Scotter, who led the study, said NZ doesn’t have higher MND mortality rates…Read More

NZ has highest rate of motor neurone disease of any country in the world | 1 News Now
NZ has highest rate of motor neurone disease of any country in the world | 1 News Now

A new study has found NZ has the highest rate of MND of any country…Read More

Study: Athletes and footballers may be at greater risk of disease which killed Celtic legend Jimmy Johnstone | Herald Scotland | V.Weldon
Study: Athletes and footballers may be at greater risk of disease which killed Celtic legend Jimmy Johnstone | Herald Scotland | V.Weldon

Intense exercise could increase the risk of developing motor neurone disease (MND), research suggests. People…Read More

Scientists discover mechanism behind motor neurone disease | BBC News
Scientists discover mechanism behind motor neurone disease | BBC News

Scientists say they have made a breakthrough in understanding the cause of both motor neurone…Read More

Transparent fish give hope for motor neuron disease | Sydney Morning Herald | Rick Fenley
Transparent fish give hope for motor neuron disease | Sydney Morning Herald | Rick Fenley

Dr Nicholas Cole is the keeper of thousands of transparent fish that glow with pretty…Read More