MND Research in NZ

Helping MND researchers by assisting in research planning and finding study participants.

Lighthouse II: Phase 3 clinical trial

The Lighthouse II Project will investigate whether targeting HERVs with anti-retroviral therapy might slow disease progression in patients with MND/ALS.

Helping MND researchers by assisting in research planning and finding study participants.

Wave Life Sciences: FOCUS-C9 trial

Clinical trial for an investigation drug WVE-004, specifically designed for MND caused by a mutation in the C9orf72 gene or C9orf72-associated frontotemporal dementia (FTD).

Understanding the relationship between the deposition of protein aggregates and the death/dysfunction of various brain cells.

Scotter Lab

Understanding the relationship between the deposition of protein aggregates and the death/dysfunction of various brain cells.

MND Clinic – Canterbury DHB

Exploring the views around the role of the MND Clinical Nurse Specialist (CNS) and incidence of MND in Canterbury.

Helping MND researchers by assisting in research planning and finding study participants.

Economic costs associated with MND

This study aims to estimate the economic costs associated with the care of people with MND for future public policy making and planning.

Centre for Public Health Research Determining the relationship between MND and a range of known or suspected occupational or environmental exposures in NZ.

Centre for Public Health Research

Determining the relationship between MND and a range of known or suspected occupational or environmental exposures in NZ.

Helping MND researchers by assisting in research planning and finding study participants.

NZ MND Patient Registry

Helping MND researchers by assisting in research planning and finding study participants.

Assessing the impact of swallowing skill protocol in patients with ALS.

Christchurch Hospital Respiratory Physiology Lab

Researching pulmonary function to assist quality improvement and new tests. 

Assessing the impact of swallowing skill protocol in patients with ALS.

The University of Auckland School of Nursing

Researching end of life care for neurodegenerative conditions

Assessing the impact of swallowing skill protocol in patients with ALS.

University of Canterbury Communication Disorders

Research into supporting adults with complex motor and speech disorders.

Assessing the impact of swallowing skill protocol in patients with ALS.

The Rose Centre for Stroke Recovery and Research

Assessing the impact of swallowing skill protocol in patients with ALS.

Striving to improve the lives of people with swallowing difficulties through improved assessment, treatment and medical education in the field of dysphagia.

Swallowing Research Laboratory

Striving to improve the lives of people with swallowing difficulties through improved assessment, treatment and medical education in the field of dysphagia.

Vanessa Morris profile pic

University of Canterbury

Understanding the role that protein aggregates, in particular those from the protein TDP-43, play in MND disease progression.

Assessing the impact of swallowing skill protocol in patients with ALS.

Thought-Wired

Researching and developing a brain-computer interface for people with severe disabilities.

Please scroll down and hover over each image to read a short blurb about that specific researcher or lab and click the image to be taken to the full profile. Alternatively you can access specific profiles directly via links available in the Research Profiles box. If you think your research should also be profiled here please contact us.

ALLIED HEALTH

 

The Rose Centre for Stroke Recovery and Research

Assessing the impact of swallowing skill protocol in patients with ALS.

 

 

 

Respiratory Physiology Lab Christchurch Hospital

Researching pulmonary function to assist quality improvement and the introduction of new tests

 

 

 

 

 

 

 

 

MND Clinic, Canterbury DHB

Exploring the views around the role of the MND Clinical Nurse Specialist (CNS) and incidence of MND in Canterbury.

 

Swallowing Research Laboratory

Striving to improve the lives of people with swallowing difficulties through improved assessment, treatment and medical education in the field of dysphagia.

 

 

 

University of Auckland School of Nursing

Researching end of life care for neurogenerative conditions.

 

 

BIOMEDICAL

 

 

 

Scotter Lab

Understanding the relationship between the deposition of protein aggregates and the death/dysfunction of various brain cells.

 

Vanessa Morris

Dr Vanessa Morris and her team are interested in the role that protein aggregates, in particular those from the protein TDP-43, play in MND disease progression.

CLINICAL

Dr Tony O’Connor picture

 

 

 

 

Costs associated with caring for people with MND in New Zealand 

This study aims to estimate the economic costs associated with the care of people with MND for future public policy making and planning.

 

NZ MND Patient Registry

Helping MND researchers by assisting in research planning and finding study participants.

CLINICAL TRIALS


Lighthouse II Phase 3 Clinical Trial

The Lighthouse II Project will investigate whether targeting HERVs with anti-retroviral therapy might slow disease progression in patients with MND/ALS.


 Wave Life Sciences: Focus C9

Clinical trial for an investigation drug WVE-004, specifically designed for MND caused by a mutation in the C9orf72 gene or C9orf72-associated frontotemporal dementia (FTD).

EPIDEMIOLOGY

 

Centre for Public Health Research

Determining the relationship between MND and a range of known or suspected occupational or environmental exposures in NZ.

TECHNOLOGY

 

Communication Disorders

Current research focuses on supporting adults with complex motor and speech difficulties

 

 

Thought-Wired

Researching and developing a brain-computer interface for people with severe physical disabilities.

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