/ NZ MND Teleconference 2nd December

NZ MND Teleconference 2nd December

December 2, 2021
10:00 am - 12:00 pm

MND Research Network Teleconference
2nd December 2021 @10am – 12pm 


The third of our teleconference series for 2021 will take place on Thursday 2nd December from 10am – 12pm.


We are delighted to welcome Dr Leigh who recently completed her PhD understanding the levels of stigma and psychological distress experienced by individuals with MND.

We also welcome New Zealand researchers Dr Alan Stanley, Dr Mandy Wilkinson and Justin Jordan, who will each discuss their upcoming New Zealand MND research projects.


This teleconference will be held via zoom. Click here for the zoom link or scroll down for log in details.


Dr Natalie Leigh; Doctorate of Clinical Psychology, Lancaster University, United Kingdom

Dr Leigh recently completed her PhD which aimed to learn whether there is a relationship between levels of stigma and levels of psychological distress experienced by individuals with motor neurone disease (MND).  The study also aimed to determine the strength of this relationship compared to other important factors such as symptom severity and social support. Many eligible New Zealanders participated in this study through the New Zealand MND Registry.  Dr Leigh will present the results from her study which will be of relevance to the New Zealand MND community.



Dr Mandy Wilkinson; Centre for Postgraduate Nursing Studies & Research Fellow with the School of Physiotherapy, University of Otago

Dr Wilkinson and a group of researchers from the Canterbury Respiratory Research Group, Christchurch Hospital, and University of Otago Christchurch campus are studying the “The role and impact of the MND clinical nurse specialist” . This is a combined quantitative and qualitative study.  Dr Wilkinson will discuss the qualitative part of the study which involves interviewing patients to explore views around the role of the MND Clinical Nurse Specialist (CNS) in Canterbury.



Justin Jordan; fourth-year medical student completing a summer studentship, University of Otago

Justin is working alongside Dr Wilkinson and will discuss the quantitative part of the study which will analyse local data around the prevalence and incidence of MND in Canterbury, including survival rates, times to treatment, hospital admission, and timing of the interventions before and after the implementation of an MND CNS and MND multidisciplinary clinic.



Dr Alan Stanley; Neurologist, Hawkes Bay DHB

Dr Alan Stanley is chairperson of the MND Clinical Working Group and is involved in several MND research-related projects.  Dr Stanley and Dr Claire Reilly (MND New Zealand Community and Research Advisor) are investigating the costs associated with caring for people with MND in New Zealand. Dr Stanley will discuss this study which is due to start in the coming months. Dr Stanley will also present the national guidelines for the assessment and management of MND that have been developed by the MND Clinical Working Group.


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